Find Nonprofit and Small Business Grants

Advance Search

Only Available for Paid Subscribers
Clear Filters
Search Filters

Grants and In-Kind Support to USA, Canada, and International Researchers to Address CFC Syndrome

Lillian’s Legacy Research Grant


GrantWatch ID#

Funding Source
Array ( [0] => American Samoa (USA); [1] => Guam (USA); [2] => Puerto Rico (USA); [3] => Virgin Islands (USA); [4] => Northern Mariana Islands (USA); )

Geographic Focus
USA Territories: American Samoa (USA);   Guam (USA);   Puerto Rico (USA);   Virgin Islands (USA);   Northern Mariana Islands (USA);
USA Compact Free Associations:The Federated States of Micronesia (USA)   Marshall Islands (USA)   Republic of Palau (USA)
International, Israel and Canada.

Important Dates
Deadline: 07/31/23 Save

Grant Description
Grants of up to $40,000 and in-kind support to USA, Canada, and International researchers for research addressing Cardiofaciocutaneous (CFC) Syndrome. Funding is intended for a broad range of specialty areas, including endocrinology, behavior, dermatology, cardiology, and neurology. The purpose of the grant is to help improve the lives of patients with CFC syndrome. Potential focus areas include seizures, behaviors, sleep disturbances, longitudinal outcomes, adult-onset comorbidities, pain, and other topics.

CFC International, with funding dedicated to Lillian’s Legacy, is accepting applications for scientific and/or clinical research studies related to the natural history, treatment, and management of CFC syndrome. Because the manifestations of the syndrome touch a wide range of specialty areas, from neurology to cardiology to dermatology to behavior to endocrinology, this RFP is designed to cast a wide net.

Grants will be awarded to qualified researchers to initiate small scientific research studies or clinical trials, the results of which could be used to obtain funding from the NIH, FDA, or other funding agencies or to attract a corporate sponsor. Procedures or proposed therapeutic trials may be new, based on recent biochemical or pharmacological evidence, or in the preliminary stages of clinical investigation. Evaluation of proposals will include careful consideration of protocol design, the objectiveness of parameters measured, and the statistical evaluation proposed. Protocols that will focus on the cause, natural history, early detection, diagnosis, or treatment (pharmacological, devices, surgery, or dietary) will be given priority. Priority will also be given, but not limited to, applicants with institutional IRB’s.

CFC International aims to partner with the applicant in research by providing access to the data in CFC International’s patient registry, actively supporting recruitment through its connections to the international CFC syndrome community, and through access to CFC International staff, board, research committee, and Medical Advisory Board. 


  • Others (see text field entitled "Additional Eligibility Criteria" for clarification)

Additional Eligibility Criteria
- Grants will be awarded to qualified researchers.
- Priority will be given, but not limited to, applicants with institutional IRB’s.

Pre-Application Information
Submission deadline: July 31, 2023
Award Date: August 31, 2023

Award announcements will be made via email and posted on CFC International’s website within 60 days of the close of the application period.

- No more than 10% of funds directed by CFC International may be used for indirect costs.
- If the study involves human or animal subjects, copies of governance documents will be required from each site involved in the study before payment can be issued.
- Clinical drug trials must meet requirements established by the U.S. Food & Drug Administration (FDA).


Estimated Size of Grant
Maximum Award: $40,000

Term of Contract
Project term: 1 or 2 years

Contact Information
For electronic submission (preferred), all application elements should be merged into a single PDF file and sent to with “Research Proposal” as the subject line.
Alternatively, applications can be mailed to the address below.

For additional information, please contact

CFC International
16716 Cory Cactus Drive
Austin, TX 78738
(813) 503-6033

Grant News
Live Chat Chat Now